How are or aren't you managing the symptoms in your own time since you know as well as I do that NO ONE inside ANY American hospitals or medical "teams" wishes to sincerely understand human physical health, much less even ONE complex chronic illness. I have tried addressing this for 12 years, myself, even addressing our CDC a couple years back only to be ignored and promptly locked- out of MYCHART - evidently permanently. "Frustrated" would not be my word of choice by now to define my feelings about a great deal of things I've learned about our country's crooked "representatives" (hahaha). (I was so grateful when my mom chose to die recently in her own home through Hospice and not Cape Cod Crooked hospital.