Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

SAMHAIN

Updated 1y ago

Heart Pain and EDS: Is There a Connection?

Does heart pain have anything to do with EDS?

Can you help? Connect today

avatar

Messymexi

2y

It all has to do with the system in your body that is all messed up. It also controls dilation and constriction of blood vessels. The dysautonomia system includes the heart 🫀
avatar

SAMHAIN

2y

I apologise, I'm also autistic and struggling to follow this message. Could you maybe re-word it a different way?
avatar

Sigil

2y

It's possible. Our whole body is made of cartilage and that's what eds messes with the production of. I would make sure you rule our vascular eds as your version of the illness, because vascular does have a lot of added considerations
avatar

SAMHAIN

2y

Most of my symptoms seem to be issues with producing wayyyyy too much keratin in my paper skin wounds, and hair follicles not breaking the skin so I have constant infectious, cystic abcesses. But, Ive noted recently in convo with an hEDS friend that ive had some heart pain that apparently isnt "normal" since adolescence 😳 I'm new to this disease community and i dont know a whole lot about EDS because it seems most of the information resources are behind a paywall or social-wall (the EDS discord banned me the literal first time I posted after someone assaulted me for posting a message like an autist? And I dont have Facebook so that community is worth-less to me dont mention it).
avatar

SAMHAIN

2y

How do i "rule out" vascular subtype without a Dr in the state who understands this condition?
avatar

SAMHAIN

2y

PPS: you mean"collagen," not "cartilage," right? Because that isn't consistent with what I've read as written?

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc