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SharkBlood23

Updated 1y ago

Looking for Support with hEDS

hello, everyone. I'm happy to try this app. I hope to find more people like me. My hEDS causes isolation and depression. I don't really talk to anymore near me about it because, they do not understand it. I hope to find people that understand me and possibly help others.

Can you help? Connect today

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LeeannD

2y

It's hard to find people who get it. Glad you found us!
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QueenSmurf

2y

Do you have fb? There are a bunch of EDS support groups.
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SharkBlood23

2y

Yes but I do not like the groups on Facebook it’s very disconnecting for me.
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Ty_Dye

2y

Hey! I’m new too, isn’t this cool? I definitely can understand where you’re coming from as I tend to isolate too.
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Nonamae

2y

I just found this app today. I don’t leave my house much unless I’m going to a doctor, pt, or taking care of my sick Mom
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Pugmamma

2y

I’m the same I’m mostly home
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Katnipp

2y

I’m just now looking into eds and I definitely know I need to go get a diagnosis. I’ve been isolating too. I’m worried about meeting new people and being the only disabled one. I don’t know how people will react :(
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Pugmamma

2y

I feel the same I feel like I have 3 friends that if I need something would help but they are healthy and work and have normal life I don’t blame them but they rarely call or check any more. I get it I do text them some so I don’t expect them to always text me first but I have other “friends “ that have similar issues and I’m always checking on them but when I reach out they just aren’t there Sorry I’m having a feel bad for me time and going through depression and grief and aloneness

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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