I haven't so I can't relate

Potsie here!! I'm sorry to hear that you have a hard time eating. I don't struggle with this symptom but I am interested to learn from other Posties about this topic! I have seen other people get feeding tubes when they generally have lost the ability to nourish their bodies. I'm not educated enough on this topic to say when the right time is... I hope some fellow Potsies can give you some good advice very soon! 🙏🙌❤️

Unfortunately feeding tubes do come with some risks. I would look into alternatives such as liquid supplementation or diet changes before doing a feeding tube. It depends on where your problems lie (physical incapability to swallow, severe GI issues, etc.) I would recommend talking to your treating physician and see if you can get a referral to a GI specialist.

I am a potsie, but I got my feeding tubes for Gastroparesis. I was labeled as pale and frail while in the hospital for a partial paralysis episode, and was struggling to eat even the smallest meals. I had failed all of the Gastroparesis medication treatments. I could barely eat a snack.

I have POTS and mild gastroparesis, I also have post prandial pain unrelated to the GP (can't figure out the cause of it yet), but bc of that it is very hard for me to eat aswell. I weighed 100lb at one point, my doctor told me that if I lost more weight we would talk about getting a feeding tube. The closest experience I have to that is I got a manometry test done, it was torture. The worst feeling ever. But I understand your pain/feelings, I often thought a tube would be easier. I found that drinking boost shakes and eating soft foods helped in the beginning. I've now gained 12lb and can eat regular foods. I still have the pain but I've just been "dealing" with it bc even with the 12lb I feel so much stronger than I did before. So, I say all that to say that a feeding tube is not a failure, but it should be the last resort. You're not alone. Talk to your doctor and see what options are available for you. I hope you get some relief and are able to eat soon ❤️