My doctors think i have Peripheral Neuropathy but none of my test came back with any results. I see a chiropractor and deep tissue specialist atleast once a week and it does wonders.

None of my doctors have ever mentioned any kind of treatment for neuropathy🤷‍♀️

I had a medical assistant tell me about electrostimulation as a pain solution but when I asked the doctor about it he refused it as a treatment and preferred I stayed on opioids as a 20 year old my whole life. I tried a few rounds of spinal injections and they helped for a day or two instead of weeks or months like they were supposed to and I was awake during the procedure so I got even more ptsd from that experience not to mention each injection was $500 after insurance. There is honestly not enough effort put into pain management with patients. They just throw opioids at us and tell us to get over it. All of the funding goes to curing disease not helping those who are already suffering.

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Update - unsurprisingly, the MRI came back clear. The next step is a biopsy of my leg, looking for small fiber neuropathy. Since no one from neurology contacted me after the MRI, I guess I'll have to track them done to get it scheduled. I was already told that a diagnosis won't really change my treatment. But adding another diagnosis to list, especially one that has an actual test to back it up might help with getting disability.

I was diagnosed with small fiber neuropathy recently after a positive biopsy. I've tried a bunch of pills from muscle relaxers to the anti-depressants with neuropathic benefits and gabapentin, and none have helped. My doctor wants to try immunoglobulin infusions (IgIV), but it's been a nightmare trying to get insurance to cover it. I hope you're able to find something that helps. Neuropathy tends to be very difficult to treat, and most commonly, the best treatment is to treat the underlying illness (if one can be found, which it often can't).

I had an EMG done which showed no neuropathy. They mentioned small fiber neuropathy, and that a biopsy would confirm that. Then ended up saying they were sure it wasn't small fiber neuropathy, and refused to order the biopsy. He said something about it not being worth the cost, he was positive that wasn't it. Medicaid completely covers it, so that was bs. And when I tried to see a female neurologist, they refused. Said I could go to Dartmouth Hitchcock (3 - 4 hours away) or New York City (minimum 6 hours away, depending on where in the city) if I wanted a second opinion. And my "not neuropathy" has gotten magnitudes worse since. Depending on what I'm trying to do is anywhere from wow that hurts to excruciating. And the pain is constant. It's also been spreading further. And now no local doctor will even see me for it. Even tried to make an appointment with a new female rheumatologist, (for my fibro and hEDS) and they refused, assuming I was trying to see them for my legs, which they already told me they can't help with. So basically, I'm screwed.

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