I have HS. I've never considered or been told to watch any of the things you mentioned. Except reducing salt. Hope to talk with you soon.

I've been told my immune system is weaker after my splenectomy which was due to HS but that's it

I have HS, had my spleen removed about 17 years ago. My hematologist just recently discovered I have extremely high platelet counts in December. Since then hes run every test under the moon not knowing if its due to my HS and lack of spleen, last week I had a bone marrow biopsy. Has anyone else had this issue?

Hi there i was born with spyrocytosis. Basically your blood cells are a different shape to most people. Theres are rounds ours are sphere shaped . I had my spleen removed at 1 year old .i truly believe it affects you by the time you get to build a decent immune. As you can immagine i didnt get much and i get real sick in the winter. Its hard as i feel so alone with it . My boyfriend has cancer and hes so lovely and its taken so long to meet someone who thinks simular. Resting up in the winter and like christmas we have both got our families christmas day so we both struggle getting organised but good for ea h other xx