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SameeJC85

Updated 1y ago

Newbie looking for support in the struggle

Hey, I'm new here, not sure how this works... but just looking for some people who are struggling like myself! I have a ton of stuff going on, so please bare with me... plus I'm going to be learning to use the app 🤣

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Healforhealth

1y

Welcome! You have come to the right place. I have learned so much and have found a lot of people I can relate to here on Alike. I deal with POTS symptoms. Severe fatigue and weakness are two symptoms I struggle to keep under control. I am working to get my vitamin levels like Iron, Magnesium and vit D back up after falling low. Do you struggle with any vitamin deficiencies that may be contributing to your overall malaise?
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SameeJC85

1y

hello, I'm familiar with POTS as I was tested for it. I have Erythropoeitic Protoporphyria so that causes me to have low Iron and Vit D. But at the moment they are well managed. I am up on all my vitamin levels, but I have to keep an eye on B12 and Potassium as I've had issues with those before as well. I'm going back and forth to the GP at the moment but don't sleep well due to chronic pain.
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BoneDustWoman

1y

Welcome! This is a nice community for support and insights. I've had ME/CFS/SEID for a year now, ever since I caught covid19 at the end of Jan. 2022. Sharing my frustrations and journey, and commiserating with others here, has been really helpful.
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SameeJC85

1y

thanks for sharing and sorry to hear that. I've been having issues since birth, but chronic pain and fatigue has only been about 10 years. I've been mostly on my own dealing with all of that since then. I'm hoping this will help :)
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Healforhealth

1y

Hey there! I see that you mentioned you are struggling with lingering symptoms after dealing with Covid19. There is an MD named Dr. Brooke Goldner that has been having great success treating people suffering from Long Covid. Her protocol is completely dietary-related and pretty simple to follow. There is a YouTube video that has some good information about it if you are interested. https://youtu.be/e9DP3AaTC48 Hope this helps! 🙏
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SameeJC85

1y

I think you meant to reply to the other lady. I haven't had Covid 19. (Touch wood) thanks though! Might be helpful information for my mum :)

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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