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Superman21

Updated 6mo ago

High Lymphocyte Count and Possible Mantle Cell Lymphoma Diagnosis

I went in for my usual check-up, feeling fine, and then my blood test came back with a high lymphocyte count. my Doctore is checking for mantle cell lymphoma. I hadn't heard about it before that. It's all been a bit overwhelming. Do you have any advice on how to navigate this? What should I do next?

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"It's completely normal to feel scared and overwhelmed, especially after looking up information online. My advice would be to take a step back from Google and focus on your healthcare team. It's impor...See More

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Superman21

7mo

take a deep breath. I know it's a lot to take in. My advice would be to find a specialist in mantle cell lymphoma if you haven't already. They can provide you with the most up-to-date treatments and advice. Don't hesitate to ask your doctor about everything, even the small stuff. No question is too minor when it comes to your health.
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Michele.PatientPower

7mo

@Superman21 The specialists are definitely the best way to proceed if you can get to one. Do you have to travel far to get to yours?
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avocad01997

7mo

Stay organized with your medical information. Keeping a binder with all my test results, treatment plans, and doctor notes made managing appointments and treatments less stressful.
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Michele.PatientPower

7mo

@avocad01997 This is terrific advice! How long have you been doing this?
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fl137

7mo

One of th major US cancer organizations put together this review of mantle cell lymphoma. It is a good place to start: https://www.nccn.org/patients/guidelines/content/PDF/Mantle-patient-guideline.pdf
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Michele.PatientPower

6mo

@fl137 Plus it's great that it's recent - from 2023! Thank you
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CalamityLeslie

6mo

Under no circumstance google it . It will scare you terribly. Dont jump to conclusions until testing is done and the doctor tells you what it all means .Wishing you the best
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Michele.PatientPower

6mo

@CalamityLeslie Great advice! So many of us forget that Google is not an MD!

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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