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rose28

Updated 1y ago

Seeking Advice: How to Discuss Possible POTS Diagnosis with Doctor

How do I tell my doctor I think I might have POTS. I've had ongoing issues with my heart for years and many symptoms of POTS but the doctors office refuses to take me seriously. I went and had a 48 hour ecg recently but I have yet to get the results. How can I make my life easier and less restrictive in what I do?

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AI-generated answer based on the text from previous posts and comments

One of the patients suggested to find a cardiologist and ask for a POTS evaluation. This may include an ECG (sonogram), Holter Monitor for 14 days, and a Tilt Table Test. It's also recommended to keep...See More

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RainbowNarwhal

1y

If they continue to not take you seriously after those results, ask for a tilt table test. If they won't do that, I would suggest finding a different doctor. Doctors who don't listen honestly aren't worth your time unless you have no other options. For managing POTS, I've found that adding electrolytes (Liquid IV) to my water consistently has really helped. I've also joined FB groups where people share their experiences and what works and doesn't work for them, kinda like this app.
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rose28

1y

my doctors basically don't care so I ended up going to the hospital and they had me on a 48 hour ecg (holter monitor) I'm waiting on the results it's been about 5 days or so but the palpitations, breathlessness and dizziness makes it hard to function. Would you be okay if I message you so we can talk further about this?
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Bre19

2d

❤️❤️❤️
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MelRad

1y

If you haven't seen a neurologist for this issue that's what you need to do. To lessen your symptoms try liquid Iv and keep packets of salt handy. That way if you feel like passing out you have it. Drink water all day long and stay hydrated. My doctor put me on propranolol and told me to drink water until my pee was pale in color
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rose28

1y

how would salt help? I haven't heard of this would you be okay if I message you and we can talk about this further
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Bre19

2d

❤️❤️❤️
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Healforhealth

1y

Hi there! You should definitely speak with your doctor. Explain all your symptoms to them, and help them understand why you are concerned that you might be dealing with POTS and that you would like to get some diagnostic testing done. If your doctor is set against this testing, then it might be time to move on. Try and find a doctor who will be more open to listening to your concerns and be more on the same page with you. If you are unable to break away from this doctor, try printing out some information for them. Record your vitals for a few weeks, like sitting blood pressure and heart rate as opposed to standing, blood sugars, sleep cycles, and give that info to them and explain (with proof) why you have these very valid concerns. I'm sorry that you are in a position like this, and I hope you get the testing you need and deserve very soon. 🙏❤️
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rose28

1y

🙏I had a 48 hour ecg recently I'm awaiting results but it's been over 5 years fighting to get this far and its scary that I have no support on this
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Bre19

2d

❤️❤️❤️
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Ash.G

1y

I am wondering about the same thing. Though my palpitations are usually panic attack or heat related. Exercise tires me out a lot though. Hopefully, you get the help and support you need.
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Bre19

2d

❤️❤️❤️
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emokitty

1y

My doctor at pavilion family medicine just asked me questions after I told her my symptoms and she diagnosed me with everything I said.
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jellycats

1y

im in the same situation. so far the tips i recommend is to 1) find a doctor that at least seems compassionate and listens to you, because i saw a cardiologist and he was in the room for less than 5mins. 2) make a list or chart of all your symptoms, when tehy started, what makes them better or worse, etc. 3) and just keep telling them what you think because i had to tell my general dr multi times before she said fine and scheduled an appointment to just talk about my fainting/dizzy spells
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jellycats

1y

oh also! i did the "poor mans table tilt test" thing at home with my dad and twin to watch over me and that would be an important thing to chart too since thats basically the test they do at the drs to see if you have pots!
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LOUIE889

1y

… It’s incredibly frustrating…. I never even heard of POTS until I was at physical therapy. Every single time I would go to sit up from the physical therapy table my heart rate would jet up at least 35 to 50 bpm. It wasn’t until my PT therapist Said I had POTS THAT I pushed for a diagnosis. Thankfully my doctors were very much on board with pushing for the diagnostic testing to really get the diagnosis via post concussion syndrome. All I can say is be your own best advocate and it’s your health so be adamant about the testing that you want. I would start with the poor man’s table test… Google it. You can also start with monitoring your heart rate. You can get a finger heart monitor on Amazon pretty inexpensively. I myself keep track with it on my Apple Watch. I would also do a Google search on POTS symptom list, because you could have a variation of POTS. I know that my blood pressure and heart rate go up, but I know others whose blood pressure goes down and heart rate goes up. Hang in there, I know it’s frustrating but just find doctors who will listen to you.
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rose28

1y

I have order a finger pulse thing just waiting for it to turn up. I'm calling the cardiology unit tomorrow as I haven't heard about my ecg results but at the same time I've been saying for atleast 10 years that I have something wrong with my heart to doctors and it wasn't until I went to urgent care with a heart rate of 133bpm that they actually took me seriously
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Letter

1y

Go to an Electrophysiology. You'll need a referral and it costs a hundred bucks
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rose28

1y

I can't do that
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Christie86

1y

U might need another doctor
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rose28

1y

I'm trying to get a full referral to a cardiologist who will take me seriously
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Christie86

1y

rose28 I know it's hard I been to 3 different hospitals and they keep telling me the same things I just want them to fix the problems. I pray u can find a doctor to take u seriously sometimes u have to do it own research to find u the best doctor I know it's not easy but give it a chance
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rose28

1y

I've been saying for years that something isn't right. Am I okay to dm you?
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Christie86

1y

Yes u can
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Gloria

1y

Go to a different doctor's office.
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Longtall

5mo

Research dysautonomia

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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