Hi! I have hEDS. My diagnosis was very fast and simple it seemed to the doctor. All my doctor had me do was a few test such as bending my fingers back or leaning down to put my flat hands on the floor. Not sure how it goes for other people so it could be completely different testing and such for you but that’s how it went for me. And to help with the pain, usually my ankles and knees bother me so i’ve got medical wraps for my ankles to keep them in place which seem to ease the pain a little bit. And for my knees i got some compression braces that you just slide over your knees to keep them in place and that seems to help to.

My doctor told to me to do light exercises to start strengthening the muscle around the joints. They also told me not to wear any braces for pain because it could risk weakening the muscles more. The advice was to wear braces if you are doing an activity that could pop something out of place. I squeeze stress balls to strengthen my hands and lift cans of soup on repeat to strengthen my arms. These are the tips my provider gave me.