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Reddest

Updated 1y ago

Introduction and Warning about Modafinil

hello! I'm new here. I go by Redd. Umm my only advice currently is to be wary of modafinil if you have idiopathic hypersomnia. It ruined my life and I was too messed up to realize it was what did it. In other news, I may not have IH... I may have CFIDS or Fibro or all 3. Made a rheumatologist appt a few months ago because we realized my pain was a. not from my scoliosis and b. was spreading and getting worse... but the appt isn't until November. 🙄 so who knows.

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InAFog

1y

I’m sorry you’re going through this and I can relate. I’m currently on Modafinil, vyvanse 30mg and xywav, but need to get off Modafinil. I only got back on it despite the negative side effects bc I can’t stay out of bed without it. Did you have any luck with the rheumatologist? Also curious if you have gotten genetic testing to check for MTHFR mutations or enzyme testing.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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