My new primary was wondering why I wasn't put on IVIG I heard it makes you worse

I started IVIG 2/11/22 had 6 treatments I get it once a week 8 hours we just had to stop it for the rest of the month because it seems this medicine had made me feel worse it's been 2 weeks without it I still feel worse I feel the doctor does not know what to do. I have to follow up at the end of the month to see what's next in the mean time I am suffering with horrible pain can't walk keep falling so upset and because I have Medicaid they don't care about people with Medicaid 😭

I have been on it for over 26 years I don’t know what I would do without it I was on prednisone before but I better that was going to kill me

I am on Medicaid also. I find that you don’t count as much. But keep trying! Don’t give up. We have to be our own advocate!