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Trumpet_Man

Updated 6mo ago

Understanding Leukemia Diagnosis and Treatment Process

How was your leukemia diagnosed? What were you feeling? What did your oncologist do ?

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Tommy247

11mo

I was feeling extremely fatigued and getting bruises, what was yours?
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Michele.PatientPower

6mo

@Tommy247 I had the same but did not know it was anything as I was too busy working insanely long hours7 days a week. Did your doctor test you when you shared your symptoms?
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Lionesss

11mo

I was feeling off, so I asked my doctor for blood work. Honestly, it's kind of a blur after that 😥
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Michele.PatientPower

6mo

@Lionesss You advocated for yourself from the start and this is great. What type of leukemia do you have?
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EliasLK

7mo

I feel like I could share my experience to help, my leukemia diagnosis was a bit of a rollercoaster. I started feeling super fatigued, like next-level exhaustion that just wouldn't let up, no matter how much I rested. Plus, I noticed these weird bruises popping up out of nowhere, and I was like, ""Um, what's going on here?"" So, I finally dragged myself to the doc, and after some blood tests and a bone marrow biopsy (which sounds scarier than it is, trust me), I got hit with the news: leukemia. My oncologist was awesome through it all. They sat down with me and explained everything in plain English, no medical jargon or fancy talk. We talked about treatment options, potential side effects, and what to expect moving forward. It was scary as heck, don't get me wrong, but having someone who knew their stuff and had my back every step of the way made all the difference. And hey, if there's one thing I've learned through this whole journey, it's that you gotta be your own advocate. Ask questions, speak up if something doesn't feel right, and surround yourself with a killer support team. You've got this!
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Michele.PatientPower

6mo

@EliasLK Thank you for sharing this. It’s so great that your oncologist spoke in human friendly language from the start and you have are confident with them. This is such an integral dynamic along with the rest of your support team. Plus we always have to self advocate. Great advice! How are you doing?
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Velinaaa

7mo

My mom was diagnosed with Leukemia about 3 years ago, this was around late November that year. As the youngest child , I was the one taking care of her through chemotherapy, hence I have a good perspective of everything that went on , and as far as leukemia is concerned. Leading to her diagnosis,she would usually complain of light headness and fatigue, and felt she was constantly under the weather. Her GP noticed abnormalities in blood work and further probed, and she was later diagnosed of leukemia. We had several consultations including the family as to discuss the best plan of treatment. The medical team also provided the needed support during and after treatment. It is quitean overwhelming journey but with the right support you should be fine.
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Michele.PatientPower

6mo

@Velinaaa Your Mom is lucky to have you! How is she doing now that she’s been off of treatment for a while?
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Michele.PatientPower

6mo

Mine was diagnosed after my PCP noticed my WBC was a bit elevated for a couple of checkups.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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