I had it my whole life and got picked on because of it

I have had over 100 revisions since 2004. I’m 29 .

I had about the same like you 110 revisions since I was 2

how did you know when a revision was needed? I still experience frequent headaches and my revision is only 2 years old. Also- did any of you have undiagnosed learning disabilities growing up? I had my first shunt placed in 1982- there wasn’t much information out there as to the side effects of hydrocephalus.

What exactly is a “revision”? How long did it take/cost?

Drink more water. My first shunt was in 1965 it lasted until 1977. It's important to always be well hydrated. It reduces protein buildup around the shunt which can lead to blockage. Second shunt lasted until 1986.