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Tammika

Updated 1y ago

Living with a Chronic Condition: How it Affects My Daily Life

How does this condition effect your daily life?

Can you help? Connect today

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Amanda2014

2y

It effects a lot...... I've been picked on cause I have NF1
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Tammika

2y

sorry you get picked on. People are mean šŸ˜„
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Heidi73

2y

I hurt a lot of the time I have fribromas on my feet and I am on my feet a lot of time.
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Bova

2y

@Amanda2014 And Tammika I Never Been Seen By And Doctor For My NF My Sister Have NF All Over Body I Have A Few That Showing My Son Have It On His Bones He Had Many Surgeries To Try And Fix Something But It Didnā€™t Work He Have Some NF On His Body
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Purple.Froggy

2y

I didnā€™t know I had NF until I was 17, I have minimal spots and no external fibromas. I pretty much go on about my day normally but have to stop and hold my breath for a bit when I bump into something and it hits one of my fibromas in my arm or something lol (ouch). I have one in my hand and I hit it against my steering wheel by accident all the time. But for daily life, it doesnā€™t affect it much aside from that. Sometimes Iā€™ll get strange pulsing nerve pain in concentrated areas but usually that only lasts max 10 mins and then it goes away

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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