Living with Chronic Fatigue Syndrome: My Struggle and Loneliness

hello I am brand new to this alike app I'm also just about to head off to work for the day yes I still have my job barely and it is part-time it is a struggle. I have chronic fatigue syndrome diagnosed by rheumatologist a couple of years ago after Epstein-Barr became post viral syndrome and it never went away. and it's a frustrating illness to have because you don't really know if that's what you have or if there's something else they're just missing and wants to get that label they stop looking. they found that I had iron deficiency and a genetic disorder in my mitochondria fixing all the little holes along the way that they did made me get about 20 to 30% better there was a point where I felt like I was 60 to 50% myself again and then it just got worse and worse again. I'm down now to the point where I can barely keep myself clean let alone my house my Daily Yoga practice is done my exercise with regular plus being an active individual and working and now I can't even do the Daily Yoga anymore I barely move outside of my work because I am a janitor so I move a lot on the job and I can't do it if I don't not do anything else. I have this and a few of other medical conditions a few that they couldn't find because they don't have them in their system yet. but I find this one to be the worst thing in the world to live with it is touched every area of my life and shrunk it. It's invisible so people expect you to act like he used to and you simply are unable to and people think you're lazy and people don't believe in it doctors don't even believe in it. and once you get the label people stop searching so you feel trapped I do anyway. I just thought I would introduce myself before I head off to work any responses I will happily chat with anyone it's a really lonely position to be in with this disorder October will be 3 years living like this I don't know how I could go on another few weeks let alone thinking of yours and yours more. how about you? How long have you been living with your condition what doctor diagnose you? How severe are your symptoms are you still able to work? Care for yourself independently? Do you think it is the right diagnosis or do you want them to keep working to find an answer? have you gotten doctors and many other people who have been dismissive of you since the diagnosis of c f s? what do you do to try to help yourself live with this condition? anyting you would tell me or you want to share however small or large would make me feel so much less alone. thank you for anyone who responds I may not be able to respond immediately because I said I'm heading off to my job right now. nice to meet you.