My first diagnosis was mono and when I didn’t get better my doctors have been at a loss. Were you diagnosed with chronic mono? I also have an impossible time planning things. I never know how I’m going to feel.

Hi there! Ill since childhood as well. I’ve hardly mastered fatigue (M.E. Since age 10, other chronic illness prior), but I’ve starting figuring out my daily max in hopes of not going in to “debt” the next day as much. It’s not exactly predictable unless I exceed my max (different for everyone), in which case I know I need to plan to be in bed for the following 48-72 hours. Pacing is kind of tricky to figure out, but it does help me in terms of a more predictable number of functional hours for most days, versus the push and crash cycle.

I’m dealing with CFS that was maybe triggered by mono, and I recently started daily B-12 vitamins. I’ve noticed a real change in my energy levels. Doesn’t help the body fatigue though :(

Hi I have Multiple Sclerosis with similar symptoms. Mono is now believed to be the root factor in the development of MS. Chronic fatigue, pins and needles, brain fog, pain, these are all symptoms of MS. Something worth noting