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gmcr

Updated 4mo ago

Living with Congenital Heart Disease: Struggles After Being Cleared

hey ! my name is g. i was diagnosed with 2 atrial septal defects, and a ventricular septal defect at birth. i had surgery to repair both ASD’s as an infant, leaving the VSD ( bc with hopefully it’ll eventually close on its own). i have LAFB, RBBB, arrhythmias, and an ekg that is consistent with pulmonary disease, or someone having a heart attack. later on, i was diagnosed with an ARSA ( aberrant right subclavian artery), and a leak in my ASD patch, and a chronic cough. i’ve lived my entire life alright, and i was cleared at an early age. i don’t think i’ve ever met someone with my condition in my life. sometimes i find it hard to catch my breath, or to do every day things and i don’t know whether it’s just me, or heart disease catching up. my family tells me it can’t be, because i was cleared, and there’s no reason for it to be a problem now, if it wasn’t before. i’m not sure that’s true, and i know CHD is a life long condition. does anyone else struggle with this even after being cleared?

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KaelVen

4mo

Hi! I have ASD as well. Do you follow up with a cardiologist now that you are older? I always go every few years to make sure everything is still okay.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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