I have been diagnosed with a form of dysautonomia but not POTS. May I ask how they diagnosed you with POTS? And, doctors don’t know what caused my dysautonomia, maybe mast cell activation syndrome (MCAS)? MCAS is difficult to diagnose and not many doctors are even aware of this condition but worth looking into.

My cardio diagnosed me with dysautonomia and POTS after doing a tilt table test. I originally went in after starting to have random fainting episodes a few years ago. All of this started about 3 months after having Covid for the first time back in the beginning of 2020 before vaccines were out. My life is entirely different now and I feel as if I’ve been sick every day for the past few years and it’s like never ending.. :(

I skipped the diagnosis. I was finally improving after 3 years and then they then offered to fo a tilt table test. I didnt want to risk going backwards by aggrevating my system with the probable tilt table aftermath. Plus, it would have been another $6500 just for an answer that i didnt want to risk stopping the recent improvement. Funny, i started improving after being really close with family with covid. Anyway, at onset, my bp would go up to 165 to 180 systolic and 170bpm within 3 minutes.