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MandazInTC's Post

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MandazInTC

Updated 10mo ago

Living with Functional Neurological Disorder: Seeking Advice and Support

Hello! I've been recently diagnosed with functional neurological disorder (FND) or also called conversion disorder. This condition comes with many symptoms. As far as I am aware, not much research has been conducted on it. Some people say it's more neurological, while others say that it's more psychiatric; most will agree that it is some mix of both. I'm curious how to know that this condition is getting better or worse overall as well as what treatments or other things have been working for people. If you have FND, what symptoms do you have? I understand that people can vary slightly in how it shows or started.

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Spunky

2y

Mine is all muscular
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MandazInTC

2y

Does that mean you have involuntary movements or tics?
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Spunky

2y

Involuntary movements pain and trouble standing
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gettingonmynerves

2y

Hi! I was recently diagnosed with this. My understanding of it is that it’s stems from the psychological, but causes physical pain. There is nothing wrong/damaged about the nerves from a physical standpoint. It’s more about the way our brain is psychologically sending/receiving signals that is the problem. My symptoms are burning and tingling pain in my arms, legs, hands, and feet. I get weakness as well. Activity seems to aggravate it.
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Valkyrie

2y

I used to get a lot of loss of motor control and absence seizures, but those are very rare for me now. Nowadays, it’s mostly pain, numbness, and brain fog. SSNRIs and beta blockers have been super helpful for me.
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echochaos

2y

Hello :) it seems we are really good matches. I've recently been diagnosed myself, and it's so complex to understand
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alucardtepes

2y

Hi! I was recently diagnosed, i have seizures when my anxiety peaks, or with certain trauma triggers that I'm still figuring out. The treatment seems to be therapy, for me specifically I know I need help unpacking the trauma I carry. That should cause my symptoms to go away.
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Spunky

2y

consider emdr
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PicklesTheCat

2y

I have a lot of seizures as well as pain, brain fog, and limb weekness. I'm seriously considering getting myself a wheelchair as somedays my legs just won't hold my body.
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MizzyMoo1

2y

I have involuntary movements, headaches, and short periods of time where I am completely unable to move (lasts around 5 minutes tops). I've also been unable to walk and used a wheelchair in the past to avoid falling due to the muscle spasms.
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NebulaFinder

2y

Hello, I suffer from numbness/tingling in my extremities almost daily. Muscular ticks and tremors, as well as light sensitivity, brain fog, loss of fine and gross motor control, and weakness when I have an episode.
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EliteLexy

1y

I have seizures, episodes of amnesia. Sensory issues and muscle tremors and jerks. That I have identified so far.
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suelittlebits

10mo

I had a stroke back in 2019 then a few years later symptoms started then I broke my neck then my back so my mobility got bad now I'm over all off that and have been diagnosed with FND the physio said my body is strong but I have to walk with a walker as I have spasms when I'm walking I'm trying to train my brain not to buy it hard because of I don't have a spasm before I walk or get up out of my chair I will probably have one in the middle of walking somewhere
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suelittlebits

10mo

But it's hard
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suelittlebits

10mo

I also have sensory issues
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suelittlebits

10mo

I fall a lot because off the spasms of I'm walking by myself and there is no one around to catch me that's how I broke my neck and my back
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suelittlebits

10mo

Has anyone who has been diagnosed with FND found a solution or any improvement from when they were first diagnosed

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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