Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

Verito

Updated 1y ago

Living with Lupus: Seeking Advice and Support

How long have you been living with lupus? What has helped you?

Can you help? Connect today

avatar

Aerith_anubis

2y

I just got diagnosed this year. So far only thing that helps is yoga for me
avatar

Passyon

2y

I was diagnosed May 2017. I am a dance and cheer coach/ director so excercise, yoga and Tai chi has helped me a lot. Meditation and me time is also important. My support system is a great help also so I DEFINITELY recommend getting a strong support system around you. You are stronger than you know
avatar

Lexta

2y

Several years, likely long before I was diagnosed too. I was not taken to doctors much, at all really, and I was usually ignored when it got really bad (eight or so painful sores in my mouth, stomach reacting violently to ANYTHING I ate). I got lucky because the guy at the ER was super nice and offered to get me checked me for it. I’m still pretty ignored, and they still push me aside like I’m a crybaby bathroom hogging loser.
avatar

Heyo

2y

I was diagnosed in November 2020. My general doctor misdiagnosed it as rosacea and juts gave me topical cream which made it worse. I had to demand to get a dermatologist to loo at me and they performed I biopsy which is where they had to cut a piece of my skin off to test it and it came back that I had Lupus. What’s been helping is healthy eating and Exercise. But the mental aspect is a whole new ballgame. It’s taken a toll on me so far and its been hard.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc