Hi there— totally understand it is a never ending game of trying to explain everything to everyone - I sometimes feel like I don’t even have the right words. It can be so frustrating.

And then they give you pity looks. It can hurt so much. Makes me feel like less of a person and more of a problem

I so so agree! Ugh and I hate how drs can’t talk to each other one specialist will say one thing another will be like oh hell no and then your primary will just be like oh ok gah! it’s like I am not a object to be fiddled around with I need help here smh 🤦‍♀️ with all the advancement of medicine and computers but all drs do is see way too many people and idk it feels like you get overlooked - specially with the multiple conditions or if you look ok on the outside - sorry a little long I guess I went on a bit of a rant 😂

No it's all so true. I am so tired of just ...dealing with feeling terrible while waiting on who knows what from who knows where

I feel you for sure! I hope you and I can both find some relief soon! Because it is so tiring but keep pushing and search for those who will listen it is hard and for me is taking for ever to find people I trust and like. Out of all my specialists right now I only like my primary and my rheumatologist.. and I guess my dentist because I just found a new one lol I pop in once and a while so if you need to talk I can try my best 🤗