Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

Soap_On_A_Rope

Updated 1y ago

Living with SLE: Seeking Support

Hello! I’m the only one in my family with SLE so I don’t have anyone who understands what I’m going through. I was diagnosed approximately one year ago.

Can you help? Connect today

avatar

Just_Tired

2y

Hey I’ve had it for a few years now what would you like to know
avatar

karinad

2y

Hey, I have SLE but my mom has another autoimmune disorder
avatar

Livingloopie

2y

Hi I’ve had it diagnosed since 2012 happy to talk if you need/ want
avatar

Soap_On_A_Rope

2y

@just_tired I don’t have any specific questions, just wanting to connect with people who can relate
avatar

Misotherat

2y

Hi! I got diagnosed 4 years ago
avatar

Elsie

2y

I was diagnosed 15 years ago. I have found that no matter if people believe you or don’t believe you, you have to advocate for yourself and your healthcare. No one knows how you feel but yourself and this is a fickle disease and no two people are alike. I still struggle trying to take it easy when I need to and I still get my feelings hurt when people don’t believe me when I say I don’t feel good. I am basically a shy person and having this disease has helped me learn to stand up for myself.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc