i also have hEDS.

Cool ☺️ This might be a funny question 😅 So are you a a random spawn of EDS or does it run in the family? I am currently trying to figure this out myself and I’ve actually found that it probably runs in the family. What about you? 😊

for me it was totally random. I’ve been doing some research too trying to learn it for myself. But i’m the only one in my family (that i know of lol) that has this. And feel free to ask any questions at all! I might not know everything because i am newly diagnosed but i’ll answer as many as i can☺️

Ive also got hEDS and some comorbid issues.

hEDS!

hEDS with co morbiditys

hEDS w/ comorbities as well.

Diagnosed hEDS, but my geneticist is ruling out other forms as vascular has been found in my family. I have the comorbidies as well.

hEDS!

@spoonii how was the diagnosis process if no one else in your family has it?

@lyns It was really quick and easy. He just tested my flexibility and asked me some questions about GI issues and if i bruise easily and that was it. I think it might be different from other people but my doctor was sure i had it just from a few simple tests that were completed in like 5 minutes.

I think I am a mutant of hyper mobility on my mum’s side. I too have hEDS. Not sure if anyone else in my family would qualify though.

hEDS too

I have comorbidities too

hEDS and the whole swarm of comorbidities