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princessbun

Updated 1y ago

Prescribed Low-Dose Naltrexone for Chronic Fatigue Syndrome

I finally got prescribed Low-Dose Naltrexone for chronic fatigue syndrome. (I also have POTS and IBS/SIBO) I am wondering who else has any experience with this medication. It is pretty pricey where I am at but I am so willing to try it. I ask because I was prescribed 4.5 while I heard some people start at .25, .5, so on.. I will be picking it up from the compounding pharmacy soon. Thanks everyone!

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Belugabear

2y

Are they having you start at 4.5?????? You really need to titrate up. I’m no doctor of course but beware of extra side effects starting at the high dose! I add 0.5 every three days. I’m just getting to the full 4.5 now and it seems to be working!
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Babypossum

2y

I was just prescribed this too. I hope it helps the both of us 😸 I was told to start at 0.5 and increase gradually but everyone’s dosing situation is different.
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MomofRock

2y

Can I ask, how does this medicine work?
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princessbun

2y

check out ldn research trust website it explains it pretty nicely, better than I could!
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Mcmeadow

2y

My doctor suggested this to me in the office just the other day and I was thinking of doing it. Should I try it?
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princessbun

2y

it's been a month so far and I havent noticed much other than I'm taking my salt pills less.
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squigglybeanz

2y

4.5 is an extremely high dose. I started at like .25 lol. It did not work for me and made me very tired, but I am part of a Facebook group who say that it changed their lives! My mom’s fatigue had also improved drastically since being on LDN! Everyone is different, but I definitely would start on a much lower dose and then titrate up. It can cause some pretty nasty symptoms if you take too much right away! Crossing my fingers and praying it works for you ❤️❤️

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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