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A_Delicate_Flower's Post

A_Delicate_Flower

Updated 1y ago

Has anyone tried Low Dose Naltrexone for pain relief?

Is anyone familiar with Low Dose Naltrexone (LDN)? I started it about a month ago to see if it would help my pains/recovery time. The Dr I got it from says his fibromyalgia patients do well on it. I have EDS and CFS but I don't think I have fibro. Maybe though. Doesn't seem like there is much online in the way of research but would be nice to hear of success stories. Plus side is that I don't have any side effects and I do think it's boosting my mood a little in that it's easier to maintain a positive attitude and not get so overwhelmed. I don't think that was the actual intention haha. also could be coincidental given that it's only been a month. I'm also concerned bc I'm going to get pregnant later this year (despite everything) and wonder about being on it during pregnancy. I did find a Dr overseas who uses it in his fertility clinic successfully but I'd still like to hear a first hand account if there are any here. Thanks I'm advance!

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Doglover25006

LDN is still being researched as far as I understand. Using it for fibro is an off label use of the drug. But it is very effective for many fibro patients myself included. It cut my pain from an 8/10 to a 4/10 on average and adding lyrica on top of the LDN most days im pain free and max pain of 2/10 unless I do something major to trigger a flare. It’s a low risk medication with very few side effects. I get every side effect there is and then some with most meds and I have no negative side effects from LDN. Not sure about taking it while pregnant though as I don’t yet have children and am not trying to at this time.

MaggieNoelle

I’ve been using LDN for about 6 months now. I’ve had no side affects. I use it for inflammation/aches and pains caused by POTS and autoimmune issues. My doctor was able to send it to an online pharmacy based in Canada. I order online 👍

Knightstarr

I have been on LDN for like 2 years. I have fibromyalgia and Ehlers-Danlos Syndrome. It has helped me a lot. There is a YouTube video that shows exactly what it does and stuff, I will look it up for you

Knightstarr

https://youtu.be/z0p0ykSzy9o

DancingZebra

I have some and don’t use it all the time anymore, just when I have a flare up but I love it.

Ripple

Hi, I have EDS and am on LDN and love it. There’s a doctor near me who gives it to most of the EDS patients and some do amazing and some it doesn’t help at all. I couldn’t tell if it was helping or not until the pharmacy had issues and I couldn’t take it for a week. Suddenly any time something or someone touched me, it hurt. That’s when I realized it helped a lot with those symptoms. Keep in mind that it takes a long time to build up in your system so it’s effect may not be obvious, especially the first few months.

A_Delicate_Flower

Very helpful comments! Thank you!🙏 The only thing I've noticed so far is that my (self diagnosed) PTSD is gone. I noticed that when I had a flare up this past week, I didn't mentally spiral at any point. I am finding it easier to stay present and feel more in control of how I'm feeling emotionally at any point. Overall I feel less anxious. Seems like that is a good enough reason to stay on it for me!

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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Has anyone tried Low Dose Naltrexone for pain relief?