I'm going to start with, this is my second day on this app. I am going to second with, I have chronic stomach pain and they are back and forth on if I have gasteoparesis or not. I also have POTS that had worsened lately. I have not been diagnosed with EDS. Honestly I'd never heard of it till I googled it. I have had many doctors mention I have hyper mobility, I have always bruised so easy, I have injured my ankle so many times I have arthritis in it, trouble controlling my bladder and bowels, lately I've been struggling to stay warm and I've already had my gallbladder out plus had a CRP test done that was 10.15 (max normal is 3) and concerned my doctor greatly. This information may have changed my life. "Curable" is never something I could have never imagined. I've been looking for one answer for so long. Obv, I can't say this is 100% fact yet. But the idea of there even being 2 curable condition that causes almost all of my physical ones... Gives me so much hope

I've actually had two MALS releases a year apart from each other and got some relief. I maybe have MALS pain 30% of the time now after eating

I had my MALS release surgery two years ago and it got rid of most of my pain after eating. The surgery itself however was a tough recovery, as it is abdominal surgery and EDS make it a little harder to heal

Jazzy! Literally same!!! This is exactly why I wanted to put this info out here!! I knew I had pots have recently been diagnosed for EDS and am at a clinic in Herndon VA, the children’s heart Institute that will be checking me for MALS and provides the release surgery!! Google dr. Abdallah in Herndon VA for more info there is a YouTube vid I will try to link it

Thank you guys for sharing your experience as I highly suspect I will be going through this surgery as well! 💕

https://youtu.be/V502lgPVmdw Link to vid with more info

I had my gallbladder out as well!