Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

Saillea

Updated 1y ago

Memory problems with MCAS?

I'm wondering if anyone else with MCAS has memory problems?? I know my fibro causes cloudy thinking but I'm wondering if the MCAS makes it worse or maybe has it's own memory issues? It's just not normal for every day words...such as "table" or "postal worker"....to completely slip my mind...is it?

Can you help? Connect today

avatar

MeeB333

2y

Yeah, don’t beat yourself up about it!! I have Fibro, too, as well as MCAS & Lyme, plus co-infections, so this happens to me all the time! But, I saw (& commented on) your other post, & I think it’s probably bad for you right now because you are unintentionally triggering yourself by ingesting things (and/or using topical products) that you are sensitive 2… :/ Hope you can isolate/identify & eliminate your triggers to minimize symptoms!!! <3 P.S. Have you ever been tested for Lyme? Btw, u are more likely to get a false negative than false positive for Lyme test, & not definitive, or totally reliable & accurate, since, after the acute/initial phase of infection, bacteria (& any co-infections, which can include viruses, parasites & fungi) can form biofilm cysts and hide throughout your body. This is why it will oftentimes not show up on test because they are not circulating in your bloodstream…But, still recommend that anyone with MCAS get tested for Lyme because it is a very common comorbidity & it is what triggered my MCAS. Good luck 2 U!!! <3
avatar

Saillea

2y

Oh wow...hon... I'm so sorry. I have been tested for Lyme several times and was negative. This whole thing is just scary. My fiance is more concerned about my memory than I am but his worry triggers my worry. I have no idea what my triggers are yet but I'm trying to sus them out. Is it awful that I don't want to leave my house because of this?? It's just so scary.
avatar

Shinshin

2y

Hi,I get memory fog a lot and have noticed it’s from MCAS
avatar

Saillea

2y

Really? Have you noticed anything particular being a memory fog trigger??
avatar

Shinshin

2y

Not really
avatar

Lhamo

2y

I definitely do. It has a lot to do with the underlying causes of your MCAS though. If it’s gut related then it will definitely do that. If not, then maybe not so much.
avatar

Bruxine

2y

Yes, my short term is damaged I also can become non verbal during reactions or attack episodes. 😔
avatar

MCADBox

1y

Brain Fog is a real thing. LDN has helped me along with a new binder that has helped me with histamine as that is the mediator I have the most issue with.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc