Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

Smash

Updated 1y ago

How Long Did It Take to Get Diagnosed?

How did you get diagnosed and how long did it take?

Can you help? Connect today

avatar

Cubantia

2y

My internal medicine doctor sent me to a RA doctor. He did his tests and sent me to get biopsy of a rash I had all over my neck, chest and back. Came back positive for SLE Lupus - 2019! I haven’t received any additional information since then since I have it I am scared to be out and about now with Covid-19. Hopefully I will schedule some appointments soon, I have been to urgent care and ER for medicine when I cannot take the inflammation and pain.
avatar

Cubantia

2y

Didn’t take long for me, sorry forgot one part of your question- thanks to brain fog! 😣
avatar

kab

2y

Mine has been a long drawn out process over years
avatar

vcr

2y

it didnt take too long fortunately, after months of feeling miserable i finally decided to go to the doctors February of 2020 and then got told to go to the ER and i was in the hospital overnight for anemia and needed a blood transfusion because my hemoglobin was at 5.2 and then after that they sent me home. then in july 2020 i went to to doctors office and they said my hemoglobin was at 6 and told me to go to the ER and they check my hemoglobin again and it was at a 5 and they said they couldnt help me and that they had to send me to a bigger hospital which was an hour away so they took me in an ambulance and once i got there my hemoglobin was at 3.5 and they were all panicking and was in so much pain because they couldnt find a blood match to mine because of the weird antibodies in my blood and the next morning they gave me another blood transfusion . and after a week of being in the hospital they came to the conclusion i had lupus
avatar

MissMarcy

2y

My lupus, took 8 years from my first face butterfly rash before being diagnosed.
avatar

Rave

2y

It took me one week to get diagnosed. My dermatologist took a biopsy of my scalp and found out I had discoid and then from there they did blood work which showed I the ANA strands indication of lupus.
avatar

annebell

2y

wow I hoped you get better
avatar

Smash

2y

My test came back negative for lupus.. but I have all the symptoms and the biggest is the butterfly rash and swollen joints. So I’m so confused
avatar

annebell

2y

I think stress can make it clear up
avatar

Rave

2y

Biopsy took one week

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc