Mine took about 5 years and count all the military docs I cycled through as on 4 doctors before they would admit that it wasn't just "bad headaches" but general migraines and hemiplegic migraines. So don't feel bad, you are not alone. Traditionally it takes them longer to believe and diagnose women than men but it all takes time and it's much easier fr doctors to take your money, give you 2 Tylenol and come back in 3 months if it not better. Doctor speak for "I don't give a shit what's wrong with you".

Mine took me being ambulanced to the hospital for a possible stroke and an over two month long migraine. I'm sorry you had to go through that but now you have answers and can start treatment

I've had 3 TIAs.. your seizures...were they sudo seizures?

I literally diagnosed myself and told my last doctor she had to look it up it’s insane how rare it is

I have never had headaches in my life I’m now 44. I went to my Dr with stroke like symptoms and sent me straight to A & E a CT scan showed a bleed on the brain. Thankfully a MRI showed this wasn’t the case. I seem to now get dreadful headaches during the night.

took me around 2 years for a migraine diagnosis, doctors kept saying it was a sinus headache until i had a hemiplegic migraine and ended up in a&e, got referred to a neurologist and got diagnosed at 14.