Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

stardust_1999

Updated 1y ago

Looking for someone with MS to compare symptoms and share their story

Hey everyone. I was discussing some of my symptoms with a friend of mine. Her mom has MS, and said that a lot of my symptoms match hers. I was wondering if someone that has MS and is comfy with it if they could reach out to me and let me compare symptoms with you and tell me their story about their journey and how they got diagnosed? sorry for all the words. The brain fog is horrible today. thank you In advance!

Can you help? Connect today

Your Alikes say
AI-generated answer based on the text from previous posts and comments

One user shared their experience with MS diagnosis: "I would say get brain scans done. That helped me get diagnosed with rrms quickly. The symptoms are all very diverse, but it sounds like you might h...See More

avatar

Imitrexqueen

1y

I had terrible fatigue! That was my main problem.
avatar

KimberlyA

1y

I was diagnosed w relapsing/remitting ms at the age of 46. I am now 64. I used to have terrible fatigue. I no longer do. A major change in diet helped tremendously with the fatigue as well as other symptoms
avatar

LadiB

1y

wat type of diet do u eat now
avatar

CaliS

1y

The neurological symptoms that led to diagnosis— i had an episode where my speech slurred and I had a problem with my motor functioning, I couldn’t type. The MS diagnosis was unfortunately confirmed by both MRI and spinal tap/lumbar puncture. I also live with CFS/ME and these were new symptoms. First go with a neurologist didn’t go well, said it was ‘stress’ and I needed to just breathe more (!) I advocated for a good neurologist to do proper testing.
avatar

KayCeeBee

1y

I had numbness and tingling on the right side of my face, but everyone’s MS is different
avatar

LukeAM

1y

I was diagnosed at 26. My first known symptoms were stroke symptoms. They put me in the hospital over a weekend. During the course of that weekend they decided it was MS. I got out of the hospital and still could barely walk. Now almost 17 years later I am still doing what I can.
avatar

Sandoll

1y

I lost feeling in my leg from knee down for 1 day!! Lots of tingling in legs and pain also chronic fatigue as well as misdiagnosis of fibro. See a MS specialist only! Not just a neurologist
avatar

skaterhelen

1y

I have MS. I have several things I deal with without mine. I'll be glad to chat
avatar

LadiB

1y

Well....I searched for more help after staring at a computer at work n "watching the letters move". I then was found to have optic neuritis.
avatar

kitaboo

1y

I had persistent nausea, the Neuro put in the order for me to get a MRI. Low and bre hold they found deymlation in it. Here I am today.
avatar

kitaboo

1y

Brain MRI
avatar

Moonpuffs

1y

Mine started with a seizure i believe, and just kept snowballing from there. Would love to chat 🤗
avatar

LukeAM

1y

I was diagnosed with relapsing/remitting multiple sclerosis at 26. We didn't have a clue that was coming. They originally thought that I had a stroke. My journey to diagnosis took the better part of one weekend. My mother took a lot longer for her diagnosis which was kind of an it can't be anything else so it must be MS. Which it was the early 90s and they did find plaques on her MRI.
avatar

Swagmantha

8mo

I was diagnosed at 21 after going in for an mri due to headaches. I have ehlers danlos as well so I assumed my other issues like extreme fatigue and body pain were just from that, but alas! I had an MRI, lumbar puncture/spinal tap and lots of blood drawn to confirm it was MS
avatar

thisIsAFibro

1mo

Hi, I know it's been a long time since this was posted, but I could really use support. I have recently developed a bunch of symptoms that could be MS. I don't get to see a neurologist for three months. I feel stuck and want to know if any of my symptoms match anyone else's. Feel free to reach out to me if anyone is comfortable with talking about it.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc