I don't have narcolepsy, but my cataplexy manifests in lack of muscle tone, intermittent vertigo, shooting pains, and frequent falls. My Dr says I have more important issues that can actually be dealt with, so I am untreated.

That sounds similar to me. Sometimes it’s like a shock thru my foot or from my head and feels like it disregulates my body and balance. When my anxiety has been high, I’ll start shaking (tremor) and feel frozen randomly- muscles trying to work but wont. Mine seems to get worse when I’m more anxious & tired (over long period) and when my back problems are worse. Legs buckles more often. Get more muscle twitches. Usually happens the worse when I go out in public and someone talks to me. I didn’t really think I had cataplexy from looking up symptoms. My doctor diagnosed me with cataplexy w/ narcolepsy. I also have nerve issues from my back so quite honestly sometimes I’m not really sure how to distinguish which it is. But when I told my sleep doc about the issues I do have (I thought were just nerve and musculoskeletal issues) he was like uhhh yeah either way you definitely have cataplexy. My doc said it doesn’t have to be complete muscle tone loss every time. Still not fully clear on which is which but just try to remember no one’s experience is the same. Now I just try and notice weird things that could be cataplexy even if it’s not “textbook” to ask about later so I can get a better idea or track and manage symptoms. Quite honestly the doctors I’ve talked to seem like they’ve only read about it in a textbook similar to fibromyalgia when they use it as a catch all for certain abnormal symptoms because they don’t know what it’s from. It’s be cool to have more clarity but for me it seems to be that when I’m not doing well all my issues get worse so I just try and focus on what I can control and what seems to help me. I think I’ve just accepted that it’s going to be unclear.

They say I have narcolepsy with cataplexy. I don't really think I do. I don't know what's happening when I go to sleep.

Interesting to here. My cataplexy happens when I laugh to its as if I'm drunk not that know what the feels like but that's kind of how it looks. My knees give out from underneath and my head will bob not being able to hold it up.