Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

SleepyAnya

Updated 1y ago

What Are Narcolepsy Hallucinations Like?

If you experience hallucinations because of narcolepsy, what are they like? I was listening to a sleep expert talk about narcolepsy today, and they said they are always super vivid, like experiencing 2 realities at once. Before my diagnosis I always felt like I was having dreams while I was awake (I still do), but I very rarely confused them with reality. What are your hallucinations like, and how do they affect your day to day life?

Can you help? Connect today

avatar

strugglebus

2y

AYO WHAT I be seeing like, things out the corner of my eyes or shadow things, but not like, hallucinations but are those hallucinations???
avatar

WallyWasTaken2

2y

absolutely they are!
avatar

KitKat1450

1y

I see the shadows especially when tired or been stressed and doc said those are hallucinations even if I know they aren’t real. I know they aren’t real cause they’ve happened since I was a kid and had a lot of practice being like welp let’s do a double take to check that and nope that was a hallucination. Had other hallucinations that were way more than shadows but when crazy shit happens in front of your eyes for me I’m just like oh shit that’s my red flag I need to up my self care and slow down. They’re sort of like feelings- they may feel real but they aren’t reality. Still valid but my hallucinations aren’t “real”. But definitely check lol may be real.
avatar

WallyWasTaken2

2y

In my experience the hallucinations are *not* super vivid. When people think of the the word hallucinations, they'll think of it like how it can be with schizophrenia where it's super vivid and realistic. But that isn't always true. Hallucinations don't have to be just visual, they can be any of you senses. For Narcolepsy it's most often auditory hallucinations, which are the hardest to identify in my opinion !! It was so crazy to me after being on meds to realize I didn't really believe in ghosts or anything anymore, because I *wasn't hearing things.*
avatar

Libby123

2y

omgggg i hear so many things that arent there, i have to ask myself “am i hearing people screaming? Or am i hearing complete silence?”
avatar

strugglebus

2y

That's crazy. Thank you for telling me this, I didn't know
avatar

SleepyAnya

2y

Anything you see or experience that isn’t really there is a hallucination.
avatar

ShelbyLane

2y

I've only had hallucinations twice. Both times I happened to b in the hospital. The 1st time they were super bad! They were very vivid! I was seeing flashes of lights, I had visions of something that looked like I was watching a movie premiere on the ceiling, I heard the nurses talking about some trick they were playing on the patients trying to see who would figure it out first, I was hearing and seeing so much $#!@ that night and the nurses just blew it off like it was nothing! I felt like I was losing my mind! I left the hospital b4 I was ready because of that. It was still going on after I got home and when I would try to fall asleep flashes of light would go off in my head and wake me back up! God it was horrible! But this last time I was in the hospital apparently I was incoherent and hallucinating but I don't remember any of it. However the Dr did tell me that hallucinations were a side effect from the combination of meds that I was on. So I stopped taking a couple of the ones that she said were doing more harm than good.
avatar

Waterlemon

2y

personally mine aren’t super vivid. it’s more like a shadow that I see out of the corner of my eye or a random noise that didn’t actually happen lol
avatar

alliillaalli

2y

Mine have varied. I once had a recurring one that was just this one specific knock on a door from a TV show I had watched. I had another where I was seeing and hearing a full symphony. It kept building to impossible levels and I could hear I swear thousands of instruments, it was beautiful, and then I started laughing because wtf is my brain doing, and then a like, 50s TV show laugh track started playing and building like the symphony had so I just went on tf to bed 😂
avatar

sleeepy

2y

mine troll me so bad because i only ever see scaaary creatures out of the corner of my eye
avatar

Ginny58

2y

Mine are mostly just extremely vivid dreams. I wake up believing they really happened. Always very scary.
avatar

out_of_orexin

1y

I always wake up thinking my dreams really happened too. Sometimes I have extremely violent nightmares and when I wake up, I dont know where I am and I'm convinced that someone's died or I've been wounded or attacked.
avatar

QuinnSee

2y

They always feel like I fall and go to sleep but im actually experiencing my interactions with people. Kind of like an out-of-body experience. However, I do get auditory hallucinations during these episodes
avatar

out_of_orexin

1y

I've experienced the "2 realities" thing before. The most memorable time was in high school, I was sitting in my biology class during lecture and thought the sofa from my mom's house was in the room, with my dog sitting on the couch. I couldn't tell if I was at school or at home for a moment because both the lecture going on and the dog staring at me on the couch seemed equally real.
avatar

strugglebus

1y

that sounds oddly familiar. I think I've experienced something like that before, but brushed it off as deja vu
avatar

Aly24

1y

Mine are super vivid. I normally stare whatever shows up until it fades away. Normally takes a few seconds since I start waking up. They happen seemingly random times. They started as large bugs and now it’s all over the place from cute animals to nightmare type things. Really hate those.
avatar

Lucky1

1y

I sometimes have vivid dream-like hallucinations at night and often have normal hallucinations in the day (they can be visual or auditory). I often hear voices when there's no one around (usually calling my name), or I see what I think is a cat or child out of the corner of my eye.
avatar

Bakon

1y

While working at a gas station a few years ago I remember one day I kept seeing a man in a military uniform in the corner of my eye It was crazy vivid but everytime I looked it was just a sunglasses rack and I repeated all day

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc