Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

hazyeclipse

Updated 1y ago

New Diagnosis of Small Fiber Neuropathy

I just found out I have small fiber neuropathy. in some areas, it's already severe. Which now explains why I have pots/dysautonomia and my tingling and burning hands and feet, and probably explains my GI problems. it's surreal.. no one found much up until now aside from pots and a brain MRI with a couple of abnormal (but not immediately threatening) findings, but it was all elusive. Has anyone else felt almost in disbelief after getting a new diagnosis? to finally start getting some answers? it's also validating. I'm so used to being dismissed, or things just coming back normal or vague, that I keep getting these thoughts like what if the results were mixed up or mistaken? logically I know it's probably not though. although I still need to find what's causing the sfn now and some other stuff I'm dealing with, it's nice to have found another piece to the puzzle..

Can you help? Connect today

avatar

Peonies

2y

❤️ 🙏
avatar

Peonies

2y

I have small fiber neuropathy too and so much is linked—the pots, all the stuff. I completely get it.
avatar

hazyeclipse

2y

did you find out what's causing your neuropathy? My rheumatologist thinks I may have an autoimmune condition, my blood work all came back normal though.. she said beforehand that I could be seronegative (I had the blood work done 3 years ago as well) though and that she might still treat me. I have a follow-up next week. I hope that I'll get some answers.. but I know some people never find out the cause :(
avatar

tallgirl22

2y

I feel this way too, I also feel like I can’t accept most of my diagnoses because I feel like my doctors will change their minds and say that’s not what I actually have because that has happened in the past. I also am diagnosed with small fiber neuropathy on my chart but no doctor told me to my face so I don’t even know who diagnosed me or if it’s a mistake :/

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc