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crunchyoddball

Updated 1y ago

Newly Diagnosed with EDS: Seeking Advice

any advice for someone with a new eds dx?

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Bartender

2y

I'm still trying to figure it out myself. Hopefully someone else will have some experience?
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crunchyoddball

2y

it's a scary new world, for sure
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Bartender

2y

What do you do for the gastroparises
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crunchyoddball

2y

I take entocourt and stick to a gastroparesis diet. It sucks, but it makes a huge difference
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Bijoux_bean22

2y

I am also trying to find balance with EDS and gastroparesis among other things. It’s not looking good though. With how its progressing I would be very surprised if I went back to school in the fall without a feeding tube of some kind.
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crunchyoddball

2y

so sorry to hear that. Are you on the gastroparesis diet? It's helping me tons.
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justkittenya

2y

Find a PT that is very familiar with EDS and will listen to you and your body.
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Bijoux_bean22

2y

@crunchyoddball I am currently existing on soup, applesauce, baby food, juice, pudding ect. It’s only made a 7% difference and I feel like all my nutrients are missing. I hate it. Gastroparesis sucks sometimes.
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crunchyoddball

2y

it absolutely does. I'm sorry you are struggling. I finally convinced my gp to see up with a dietician

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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