hi there! Nice to meet you. I'm 44 and have been search for a diagnosis for all of my "odd syndromes" for about 20 years! I never realized I was hypermobile until my new Rheumatologist pointed it out after I was discussing DNA testing I had done and noticed I have a gene mutation for EDS. I had bursitis and tendonitis in my Left shoulder at 17 and frequently rolled my ankles and neck Instability, all from marching band!! Glad I was never in competitive sports as a child! My worst right now is the fatigue, the muscle fatigue and stiffness (after doing routine activiturs) and low back pain from my SIJ. I Think I'm in a bad flare right now, but honestly, Im still learning how to tell when I have a flare becausr I feel like im always bad😥I would love to hear what has worked and what hasn't from all of yall!

I hope you find answers soon!