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fndandme

Updated 1y ago

Looking for triggers of non-epileptic seizures

anyone who also has non epileptic seizures, have you found a trigger/s? i can't find one, the only thing i can kind of find is if im feeling a lot of any emotion. whether i'm really happy or really angry or really excited. anybody else?

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Beckboop

1y

I’ve found feeling this sort of zoned out feeling triggers it for me. I’m not sure if it’s anxiety, dissociation or fatigue
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Beckboop

1y

Oh and also propranolol helps me with that because when I zone out my heart rate gets really high for some reason :/
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Beckboop

1y

I’ve finally found someone else who has this though! I’ve never met anyone else like me before. How are you doing? I’ve only just been diagnosed and the doctor said he can’t guarantee I will ever be completely better I hate not knowing how I’m gonna be one day to the next :(
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fndandme

1y

im doing okay thank you! my doctor said the same thing and it's really heartbreaking to hear things like that. but pls know im here if you ever wanna chat xxx
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ohswear

1y

i have this! no set triggers but too much of one emotion and im off. i view it as because our brain functions differently,, we feel too much of one emotion regardless of whether it’s positive or negative and our body cant cope. pacing yourself is key 🫶
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fndandme

1y

thank you so much!
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Ashtonn

1y

For me crowds and noise and stress/anxiety are my main triggers, as well as being tired from lack of sleep. Hope this helps!
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fndandme

1y

thank u!!!
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Evilregal

1y

Too much or not enough sugar, stress, fatigue, anxiety, crowds, and not enough to do
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Shazzie

1y

Oh lots of triggers sudden loud noises being surrounded by lots of people unable to get pain under control, flashing lights and car horns shop alarms overstressed 😢
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LadySquigglebones

1y

Physical activity, screens, harsh lighting, being tired, loud noises, sometimes eating, sometimes repetitive movements like foot tapping, and worrying about the seizures actually brings them on sometimes. Then doing anything but laying down watching tv makes them get worse once they’ve started

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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