For me, it made me worse and ate up my calcium and had to stop taking it. I have to take calcium supplements now because it's not reversible. I hear it does work for a lot of people though so I'd say just pay attention to your body.

I was just prescribed this today one week post-op…. Will update later about how it goes

i was offered orilissa and after some research i decided not to take it. the risks to me were not worth it. a lot of people reported severe suicidal ideation and permanent ovary dysfunction. lupron is the injectable version, please beware if your provider tries to tell you they are different medications, they aren't!

I've been on orilissa for almost 3 months now. I haven't had a single period, and I was also weary about the side effects because I don't need my depression worsening. It was fine for the first 2 months, then I got covid and I'm not sure if that made a difference , but my pain returned and my doctor started me on muscle relaxers in addition to orilissa. I will tell you it was a nightmare getting it approved by my insurance company but it could be easier for others.

I was on the trial portion of Orilissa, it caused unreversible Osteopenia, and was discontinued. Most Endo advocates are against its use as it's not really a cure.

I am not there yet, but I feel my GYN will recommend it at some point. I wouldn’t take it though I know everyone is different. I have heard nothing but bad things from the Facebook support group I’m in about it. I hear mostly of that it didn’t help and left irreversible side effects though I don’t remember all of what, I know it all wasn’t good. 😥