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RonJohnson

Updated 1y ago

Looking for experiences with ovarian vein embolization

Had anyone gotten an ovarian vein embolization or other treatment from an interventional radiologist?

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QueenLady

2y

Also curious on whether anyone has had ovarian vein embolization!
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RonJohnson

2y

I am going to get one and will let you know how it goes! I have an MRI with contrast this Monday and will be getting the procedure ASAP after
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HeyReese

2y

Curious too! I’m about to get one this month 😬. I’m super nervous because I have an autoimmune disease & I can’t find any medical studies regarding coil migration in the long term
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HeyReese

2y

Also, QueenLady, a pelvic floor specialist is not the best for PCS. I would speak to at least one vascular specialist. They’ll do a CTA (special type of CT scan) &/or a diagnostic venogram (minimally invasive procedure)
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QueenLady

2y

thank you!
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Birdies

2y

I'm having a CTV done this Thursday and am very nervous. Does anyone know where they insert the contrast?
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RonJohnson

2y

I just had an IV line and they have you hold this bar to keep your arms up. The contrast was added to my IV electronically from a machine and it feels weird- like a hot sensation moving through your body. They Told me I would feel like I was going to P my pants, but I had just Peed before I went in and for me it was more of an almost burning sensation in my bladder but it only lasts for a few seconds
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RonJohnson

2y

I was super nervous too, but it went really quickly and was easy and painless. I didn’t even have to go into the big machine it was a small ring I was pulled in and out of laying flat on a bed
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Birdies

2y

Okay thank you because someone told me the neck and I started to freak out. I see the vascular surgeon right after. I'm really hoping they find something because I've been struggling pain wise. Not sure if anyone else has this symptom as well but my feet turn purple, sometimes just my left one and my right stays pale.
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RonJohnson

2y

My feet do the same but it’s both for me, I’ve had this symptom since I was like 12! It’s crazy how many times it was written off as “bad circulation/not concerning” my GPs but it’s my understanding that it’s a PC symptom
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ChronicPainWarrior_

2y

I have I had 15 coils placed in gondal veins bilaterally 😭

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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