Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

Eripsa

Updated 11mo ago

Periventricular Brain Lesions and Fibromyalgia Diagnosis

Do any of you have Periventricular brain lesions? My neurologist decided to go with a fibromyalgia dx instead of MS despite my raynaud's, tingling hands, and lesions. Is fibro associated with brain lesions too?

Can you help? Connect today

avatar

UnluckyUnicorn

2y

I would go see a new neurologist. Raynaud’s phenomenon, yes. Brain lesions, no. I would go advocate for yourself somewhere new, to someone who knows what they are talking about. Brain lesions should be taken seriously. I’m upset with the doctor, not you. I hate when they are just like “hm you have x, don’t worry about y, see ya”
avatar

Eripsa

2y

💕 Thank you for the reply! I had been on the fence about seeing another neurologist; he made a really good first impression but as time went on it just got more and more strange. I remember calling and asking about my arm dropping suddenly and his only comment was " that's not a symptom of migraine " - like, no kidding doc. And now he's claiming he didn't recommend a yearly MRI even though my mom was with me in the room when he said it, so I know I'm not remembering wrong.
avatar

UnluckyUnicorn

2y

Yikes, that’s called medical gaslighting and that’s very dangerous. You are not crazy, you are not wrong. You have a right to another opinion. You have a right to advocate for yourself. I hope you are able to get to another neurologist soon. I’m proud of you for trusting yourself to say that something wasn’t right about that! You know your body and you have a right to good treatment. I hope you get it!
avatar

Eripsa

2y

You're so kind! It really helps hearing that my thoughts are valid ❤️
avatar

UnluckyUnicorn

2y

I totally understand! It can be hard going through this and easy to doubt ourselves. Especially if the medical professionals that are supposed to be there to help us are feeding into those doubts. It can be isolating. Making an already scary experience worse. But you are valid! Your experience is valid. Your thoughts are valid. Your feelings are valid. And your pain is valid. Take care of yourself! I’m rooting for you ❤️
avatar

Averyram

2y

Always always get a second opinion it never hurts! Remember they work for YOU!
avatar

chonkyfeline

2y

I have all those same symptoms but my MRIs showed no lesions on my brain. My mom has MS and we have similar symptoms. I would request an MRI
avatar

saltybutsweet_22

2y

I have brain lesions that my neurologist says are just from my chronic migraines....🤔
avatar

FierceLeoBoss

11mo

Doctors 🙄 … smh your chronic migraines are likely stemming from FB or some other autoimmune disorder. Same boat here.
avatar

Eripsa

2y

Are the lesions anterior @saltybutsweet_22? Cleveland clinic says that lesions from migraines are located on the outer sides of the brain and that migraine induced lesions don't appear on the center of the brain
avatar

saltybutsweet_22

2y

@Kiiroitori my mri report says there bilateral supratentorial.
avatar

Sexylady

2y

I have Traumatic Brain Injuries.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc