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2high2try

Updated 1y ago

Looking for Connection with Others with Similar Physical Differences

Hi, I’m interested in hearing some world views from different people who have similar physical experiences to myself. I have a tumor intertwined in my spinal cord which unfortunately can’t be removed without paralysis. Noticeable physical differences began when I was about 6. The left side of my body is weaker and more difficult to use, as I’ve grown older it’s become more difficult. My left arm feels stuck, and I walk with a weird hop due to the weakness in my left leg. Long story short I often feel alone in the world and I just want somebody to share my struggle and really understand my feelings. I’d love to connect with some people.

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Trumpet_Man

1y

Are any of the newer surgeries available for you. Position is everything ( no pun intended) but if they can’t resect it then how about radiation? Have you contacted the bigger important hospitals like Mayo Clinic or John Hopkins etc?
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greentea

1y

I have an inoperable brain tumor. I had proton radiation this summer! Feel free to message me anytime.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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