My actual question has to do with how to me physical therapy sustainable for my life. Before I ask it, though, I’ll give some background info. I’m in the process of being yes assessed by a rheumatologist, so my diagnosis is a little up in the air. She’s still waiting to get my x-rays and blood work back, but her process is that I might have an auto immune disorder.
This is where things stand at the moment, though:
- I was diagnosed with fibromyalgia by my PCP in December.
- I have a really long list of ongoing symptoms. The ones that cause me the most difficulty in life are my chronic muscle and joint pain, brain fog, intense body aches, and severe ongoing fatigue.
In the past year, I have started physical therapy three times. I try so hard to maintain going, but I inevitably struggle more and more as time passes. Even without physical therapy, I usually have 2 to 6 medical appointments a week. I am working my hardest to do 30 hours of work a week, but I’m having trouble getting beyond 15 to 20 hours. Finally, I am prone to injuries that make it even harder to work, like de Quervain‘s tenosynovitis. I frequently have had days that I have physical therapy scheduled and I want to go, but my body feels like it’s about to give out on me/I am about to pass out. Most of the time, The reason I have canceled PT appointments in the past is because my body and brain are absolutely exhausted, and something has to give. Once I’ve canceled two or more appointments, it’s harder and harder to get myself to stick with Pt because I am ashamed of all of this. I also struggle with certain memory factors, including keeping up with appointments.(I do my best to immediately put them in my phone calendar.)
I’m interested in hearing anyone’s thoughts and advice. I want to start physical therapy again, but I will honestly probably feel worse about myself if I start it and can’t maintain it once again. Thanks for reading ✨