Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

Del97

Updated 1y ago

Possible HEDS and Injury - Seeking Advice

I suspect I have HEDS but not confirmed. I’m hyper mobile almost everywhere but in some places have very odd “double joints”/hyperextending abilities. I get injured fairly easily but like my dysautonomia (which is diagnosed), it gets worse as I get older. Two weeks ago I popped my toe to crack it and somehow it was too strong and I tore a ligament or something. Doctor put me in a hard shoe to help it heal bc walking on it makes it worse/makes me re-injury it. He said it’ll prob heal in 2-3 weeks on its own. Is this possibly due to HEDS or does anyone else have ideas for why I tweak things so easily? I’m also autistic.

Can you help? Connect today

avatar

Quari

1y

On the Ehlers Danlos website (has a zebra), they have a checklist you can go through to see if you likely have hEDS. I went through this and it helped me get a diagnosis for hEDS. Looking through all 13 EDS's may help as well.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc