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PeachyPixie's Post

PeachyPixie

Updated 1y ago

Possible Lupus Diagnosis - Seeking Advice

My doctor believes that I have lupus because all of my issues correlate but no matter what no blood tests come back positive for anything but she believes I have lupus or at least some sort of autoimmune issue. Did any of you have these problems?

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Sheek

Do you have any symptoms or have they checked your ANA

PeachyPixie

I have joint stiffness, pain, and looseness, fatigue, I can't sweat, I have sinus problems, migraine, I get a rash across my face, I get stiff muscles, I have basically no sense of smell (non COVID related), iron deficiency, vitamin d deficiency, anxiety and my ANA and all other blood work comes back normal. I even had a spinal tap recently and it was normal.

Peppy.Pepper

My doctor diagnosed me with UCTD (with lupus like features.) Aka because all my symptoms said lupus but my ANA did not, sometimes insurance MDs will not recognize an official lupus diagnosis. However, she is able to treat it the EXACT same way if she labels it differently. With Undifferentiated Connective Tissue Disease, there is no “official” medical diagnostic requirement through bloodwork

Ksn

understand... mine is odd too... my ANA says yes but my overall symptoms are questionable. I have other health issues so they say Lupus but I wonder now. The also said I also have Connective tissue Disease, Fibromyalgia etc.

AnecdotalFox

Do you mind if I ask what symptoms you are having?

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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Possible Lupus Diagnosis - Seeking Advice