What is fibromyalgia? I do have both an active POTS diagnosis and a EDS diagnosis which both relate to the heart in some ways.

I have POTS and fibro as well as EDS. SwissMissMint (love the name by the way) fibromyalgia is a syndrome with wide spread musculoskeletal pain, fatigue, brain fog, tenderness, sleep disturbances, digestion issues, and many more symptoms. I’m not sure if my fibro was a misdiagnosis for my EDS or not so I just stick with both and both are on my paper work

UnluckyUnicorn, What are some things you do to help with pain? Or medications? My doc gave me an anti-inflammatory for now while we figure things out..

Smash, I personally love CBD lotion/oil! It really helps relieve my muscle pain. Magnesium is a really good supplement for fibro. So far me and prescription medication aren’t doing well, I’ve had a lot of allergic reactions. However, I’ve heard great things about Cymbalta and Lyrica for fibro. Epsom salt baths are great (even just a foot bath) for relieve some muscle tension. Pacing yourself. Gentle exercise can help. Drink plenty of water (with POTS I’m sure you know all about that). Massages can help, though if you are someone who is very sensitive to touch either opt out or talk to people, I’ve known other fibro warriors very sensitive who said they found understanding massage therapists. It’s really a lot of trial and error. I recommend reading the book “the Fibromanual” it really helped me

I also have POTS & fibromyalgia with a potential EDS diagnosis in the works. I'm with UnluckyUnicorn on the CBD lotion/oil for muscle pain. I'm currently on Cymbalta, Meloxicam, and Gabapentin. Not only does the Cymbalta help with pain but I use it mostly as an anti-anxiety med. I also agree that the Epsom baths help. You can also get bath bombs ot bubble bath stuff to make it more fun. My heating pad is my best friend if I can't get out of bed. Lots of water and salty snacks on hand are always a good idea!!

Yes!

I have POTS and fibro!

I’m just looking for tips! My pain is mostly in my legs and it’s debilitating sometimes. I use my heating pad constantly and I’m thinking of starting cbd cream!

Same here, both POTS and fibro! Seconding what people have said here about CBD lotions and Epsom salts- I do sometimes need to avoid baths though when my POTS is acting up since the heat makes my dizziness worse, but otherwise it’s usually super helpful

UnluckyUnicorn, I just saw your message, and now I wanna look into it with my doctor more. Also it seems like we have a lot of shared conditions, which means I might have a lot to learn from you.

SwissMissMint, I am happy to chat with you anytime! ❤️