Struggling with POTS and Dehydration Headaches

I can’t keep enough water down to manage my POTS and I keep getting dehydration headaches. Has anyone tried thick water? I want to see if it works before I resort to iv fluids

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lemonjuice

3mo ago

Are you using electrolyte powders yet?

EDSdancer

3mo ago

Yes, but the issue is that I can’t drink enough without getting nauseous

mistilee

3mo ago

I drink liquid IV, it helps way better than plain water. I do get nauseous as well if I drink to much at once. I try to drink small amount through out the whole day.

Quari

1mo ago

I am on Fludrocortisone, and it basically helps you retain your salt to stay hydrated. Also, have you ever heard of and looked into Mast Cell Activation Syndrome (MCAS)? You seem to have many of the comorbidities and symptoms. Just a thought 🤷

EDSdancer

1mo ago

thanks! I have heard of MCAS but the allergist I saw said I don’t have it.

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