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Levanter

Updated 11mo ago

Need advice on getting a POTS diagnosis

i'm trying to get a diagnosis for POTS but i have no idea where to start or who to see for this. this is all so new to me. does anybody have any advice from experience? it would be greatly appreciated 🥲

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mystiq

2y

You are best seeing a cardiologist or a neurologist that can perform a tilt table test. N
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Levanter

2y

thank you!! i kept hearing different things from ppl so this was helpful 🤗
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LeeannD

2y

agree completely! There are also pots specific doctors.
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inspainwithoutthes

2y

it might also be helpful to find a doctor listed on dysautonomiainternational.org!
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Keava

2y

i concur with a neurologist or cardiologist! i personally had a better experience with my electrophysiologist vs a regular cardiologist, but the other comments are giving GREAT advice!
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Healforhealth

2y

In my experience, seeing a cardiologist is kinda hit or miss. Cardiologists are great if you have any kind of structural defects or blockages. They handle the "plumbing" of the heart. EPs or Electrophysiologists specialize in the electrical pathways of the heart, so they have a bit more knowledge and can better detect and understand abnormalities in heart rhythm (like a spike in heart rate upon standing). A neurologist is an excellent choice aswell because POTS is a dysfunction of the autonomic nervous system, right up a neurologists alley! Good luck!! I hope this diagnosing process is super fast for you!! 🙏❤️
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hazyeclipse

2y

Dysautonomia International has Facebook groups for different regions, and I found my doctors by asking for recommendations there. Once you find a doctor who can take you through the diagnostic process, they'll probably make sure there's no structural issues that could explain your symptoms or abnormal heart rhythms. Usually they'll have you do a stress test with an echocardiogram, and have you wear a 30 day heart monitor. If those come back clear (aside from maybe lots of tachycardia recorded on the heart monitor) they can order a tilt test. That's the most common diagnostic test for pots
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rokay777

2y

that's how I got it but without the stress test
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E.m.m.a

2y

I saw a neurologist who referred me to a cardiologist for testing. However, the only doctor I talked to was the neurologist.
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SharkBlood23

2y

This is the expert for pots and eds in my area. He even explains it in this article if you scroll down. https://franklincardiovascular.com/autonomic-dysfunction-philadelphia/
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rokay777

2y

I would suggest to see specifically an electrocardiologist
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Faithiee

2y

I would suggest finding a neurologist and cardiologist that both agree to run a tilt table test :)

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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