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rosieee

Updated 2y ago

When were you diagnosed with POTS?

How old were you when you were diagnosed with POTS?

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Sadchemist

2y

I wasn't diagnosed until I was 26
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rosieee

2y

what was your process of getting a diagnosis?
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Brynn36

2y

About 15 when I was diagnosed, was about 23-25 when it got significantly better. I’m 28 now. Still have it but it’s still significantly better and I don’t require medications or IVs anymore.
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rosieee

2y

what was the process you went through to get your diagnosis
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BoomerangValentine

2y

I was 20 when I got diagnosed. I got really lucky, because for me the process was easy. I saw a cardiologist who did a holter monitor. Then she ordered a tilt table test which confirmed POTS. I had to see one cardiologist before her, and he was really dismissive (didn’t want to run any tests), but once I found the doctor who diagnosed me, it was really easy
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Jillfp511

2y

It took me YEARS to be diagnosed. i was 20 when they finally did
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Leighton

2y

I was 19 at diagnosis but symptoms started at 13
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NewYork

2y

About 15
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teeny

2y

i was actually diagnosed with atrial tachycardia at 17, after experiencing symptoms since i was around 13. mine isn’t too extreme but to get diagnosed i went to a cardiologist and had a stress test, then a heart monitor for a week
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Student_girl

2y

I’ve had symptoms for a long time but diagnoses about 2 years ago, age 16
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kingseijuro

2y

I was 15 and im now 21
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Tao

2y

16
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Tot

2y

23
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hazyeclipse

2y

19. I'd been having symptoms since I was about 14-15 though. I'm now 21
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SJP

2y

Same here, except 20 now.
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outpickingdandelions

2y

Diagnosed at 17 but I've experienced symptoms most of my life, initially getting worse at 15!
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Weeble_Wobble

2y

35 I suspect I’ve had dysautonomia since I was a teen. During my teen years I had vasal Vagal syncope, I believe it’s being renamed and physicians think it’s all part of the same thing.
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AudaCity

2y

Age 23. It took a lot of throwing up at pet stores to make people put the pieces together right finally.
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SJP

2y

19, but I had symptoms for well over 4 years with charts to prove I have it.
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SJP

2y

Oh, I already responded 😂 Fibro brain fog, sorry.
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Tinyty

2y

I’m on a heart monitor right now the cardiologist wasn’t seeming comfortable with pots with a tilt table test but rhumologist did one . What do I do now? With the holster monitor for 7 days catch anything or bring me closer to what I should do next ? Or will it be a dead end where the cardiologist doesn’t even look at pots anymore I do have a severe b12 issue not sure if it’s mimicking pots or if it caused pots from nerve damage
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Wrynae

1mo

I was dxd 2 months ago at 49 yrs of age
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idk_182

4d

I’m on a waiting list for a cardiologist to get my diagnosis and I’m 18 (:

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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