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OnyxGaming

Updated 1y ago

Looking for others with POTS or EDS

Hey! I just joined this and I have similarities to you. I was wondering if you also have pots or eds? I'd love to have other people to talk to about it.

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McNic

2y

I have both together it's not the most fun but you learn your own special ways to cope
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AeL

2y

Welcome 👋 I have both plus others.
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Nightshade

2y

Same, both plus others!!
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CT1409

2y

I've got both! And a bunch of others! 💙
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Opal

2y

Hey!! Know I have POTS and am getting close to an EDS diagnosis rn… been curious and asking people how they separate the symptoms to their cause. Like what’s the line between pots and EDS?? (I know their are different kinds: I have hyper POTS and suspect hyper mobile EDS)
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Molls

2y

I do! I have POTS, EDS, MCAS, and have a port for hydration
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Campbell

2y

I have POTS, and other autoimmune diseases. I hate telling doctors I have POTS, because they automatically go to marajuana. It’s an unfortunate acronym. I can’t take marajuana because it makes my heart race, off the charts! I’ve resorted to calling it Tachycardia Syndrome.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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