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Skielyr's Post

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Skielyr

Updated 11mo ago

Looking for fellow zebras with POTS and EDS

Hi! I'm new here and looking for others with POTS and EDS. Where are all the zebras at? 🥰

Can you help? Connect today

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Emrys.the.warrior

2y

Not confirmed yet but I’m in the process of getting tested for both ☺️🦓🧂
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LoveLuna

2y

POTS 🙋🏼‍♀️ I see a lot of people in my support groups with both, but I don’t really know what EDS is. what are your main symptoms from EDS?
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Skielyr

2y

for me symptoms are hypermobility causing pain and dislocations/subluxations, seizures, and GI issues causing lack of appetite, then ravenous appetite when I have a reprieve.
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Skielyr

2y

I also am getting an echo for a new murmur
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Mimi21

2y

Right here! 🦓 EDS, POTS, MCAS and chronic migraine
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AweGeez

2y

I’m new here as well! Living with POTS for 3 years now
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Bijoux_bean22

2y

EDS, POTS, MCAS, Gastroparesis and chronic pain. Always happy to chat! <3
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hazyeclipse

2y

I have POTS. Pretty sure I don't have eds, don't meet the criteria, although I'm hypermobile in some places
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SJP

2y

I'm POTS + Joint Laxity + Hyper mobility, but not diagnosed EDS. 👋🏻
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Liddy

2y

EDS and just diagnosed with POTS
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Giraffa

2y

I have both! ✋
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Skielyr

2y

Hello everyone! Thanks for the welcome. 🥰
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Weeble_Wobble

2y

I have POTS and suspect EDS. ❤️ 🙏 hello. I’m new to the app too.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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